More needs to be done to help diagnose and treat young people who are suffering with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS).
This is according to Sir Peter Spencer, chief executive of Action for ME, who believes that delays of up to a year and a half of getting a confirmed diagnosis were "wholly unacceptable".
He said that there are very few ME or CFS services available to children in the UK and that was particularly damaging to their education, as the illnesses require them to miss a large part of their schooling.
"No other illness has such a devastating impact on so many people but has so little money spent on scientific research or the provision of specialist healthcare," Sir Peter added.
His comments came after a scientific study from researchers at the University of Bristol found that around one per cent of secondary school pupils in the UK could be suffering from chronic fatigue.