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Children Living with Inherited Metabolic Diseases

Organisation name
Children Living with Inherited Metabolic Diseases
City/Town
Crewe
County
Cheshire
Postcode
CW2 6BG
Description
support to families; research into all genetic metabolic diseases
Main Phone No
0870 7700 325
Fax
0870 7700 327
Helpline number
0800 652 3181
Helpline - Hours of operation
0930-1600
Main Contact
Pam Davies
Main Contact Job Title
Family Services Manager
Does the organisation have a local support network?
Yes
Details of support network
various around UK
Does the organisation provide free publications or leaflets?
Yes
Does the organisation publish a newsletter?
Yes
Details of newsletter
three times a year - members only
Does the organisation fund research?
Yes
Details of research
restricted to metabolic diseases
Keywords
metabolic diseases; advice; support; info: