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Association of Glycogen Storage Disease (UK)

Organisation name
Association of Glycogen Storage Disease (UK)
City/Town
Altrincham
County
Cheshire
Postcode
WA15 9DZ
Description
Provide information on GSD letter, telephone, internet. Encourage provision of specialist care/research centres. Act as focus of scientific, educational and charitable activities for GSD.
Main Phone No
0161 980 7303
Helpline number
0161 980 7303
Does the organisation have a local support network?
No
Does the organisation provide free publications or leaflets?
No
Does the organisation publish a newsletter?
Yes
Does the organisation fund research?
Yes
Keywords
support, annual conference, 3 x newsletters, information leaflets, speakers