If you had a 'collapse' or an 'episode of odd behaviour' or some similar event, it is possible that you had an epileptic seizure. This page gives some information about what your doctor may wish to know, and what tests may be advised, after such an 'event'.
Sometimes it is difficult to be sure if you have had a seizure. (Older words for seizures include convulsions and fits.) The problem is that other conditions may cause symptoms similar to a seizure. For example: faints, panic attacks, collapses due to heart problems, breath-holding attacks in children, and other less common problems.
Some questions that you and your doctor may have to answer include: Was the 'event' a seizure? If it was a seizure, was it due to epilepsy or to some other cause? If not a seizure, what was the cause of the event?
What is a seizure?
A seizure is a short episode of symptoms caused by a burst of abnormal electrical activity in the brain. Typically, a seizure lasts from a few seconds to a few minutes.
The brain contains millions of nerve cells (neurones). Normally, the nerve cells are constantly sending tiny electrical messages down nerves to all parts of the body. Different parts of the brain control different parts and functions of the body. Therefore, the symptoms that occur during a seizure depend on where the burst of electrical activity occurs in the brain.
There are different types of seizures but they are broadly divided into two main types - generalised and partial.
- Generalised seizures. These occur if you have a burst of abnormal electrical activity which affects the whole of the brain. It affects consciousness, and may cause a convulsion.
- Partial seizures. In these type of seizures the burst of electrical activity starts in, and stays in, one part of the brain. Therefore, you tend to have localised or 'focal' symptoms. Different parts of the brain control different functions, so symptoms depend on which part of the brain is affected. Partial seizures may not affect consciousness, and may affect sensations, emotions, behaviours, muscles, or combinations of these.
What is epilepsy?
If you have epilepsy, it means that you have had repeated seizures. If you have a single seizure, it does not necessarily mean that you have epilepsy. About 1 in 20 people have a seizure at some time in their life. It may be the only one that occurs. The definition of epilepsy is 'more than one seizure'.
Epileptic seizures arise from within the brain. A seizure can also be caused by external factors which may affect the brain. For example, a high fever may cause a 'febrile convulsion'. Other causes of seizures include: lack of oxygen, a low blood sugar level, certain drugs, poisons, and a lot of alcohol. Seizures caused by these external factors are not classed as epilepsy.
Getting the right diagnosis
The most important part of making a diagnosis is to have a clear description of what happened. This is both from the person affected, and if possible, from an eyewitness.
It can be difficult for a doctor to definitely say that you have had a seizure if the description is not typical. For example, a faint can sometimes cause brief stiffening of the body followed by a few jerks of the arms and legs. This may appear to an onlooker to be a short seizure, but it is not a seizure. A doctor may ask questions to try and find the cause of what happened. If your doctor is unsure about the cause of the event, you may be referred to a specialist.
The specialist and tests
The specialist will want to go over the story of what happened. Below is a list of the sort of questions that you may be asked. Try and go over the answers to these before your appointment.
- What exactly happened before, during, and after the event?
- Did you lose consciousness?
- Were you confused before or after the event?
- Did any parts of your body shake? If so, for how long, and in what way?
- Did you bite your tongue or pass urine?
- How long did it last?
- Did you have any unusual feelings, sensations, or emotions before the event?
- Do you have any other symptoms at all, even apparently unrelated?
- Had you taken any alcohol, medicines, or street drugs before the event?
- Has anything like this ever happened before?
- Does anyone in the family have epilepsy?
- Have you had any head injuries or illnesses affecting your brain in the past?
- Did you feel well before the event, or did you feel poorly, light headed, hot, or distressed?
- Can you think of anything to explain what happened?
It is very helpful to the specialist if a person who saw what happened goes with you to the appointment. Sometimes the specialist can give a cause of the event from the description and examination alone. Sometimes further tests are advised. These may include the following.
- A brain scan (usually an MRI or CT scan) can show abnormalities affecting the structure of different parts of the brain.
- EEG (ElectroEncephaloGram). This test records the electrical activity of the brain. Special stickers are placed on various parts of the scalp. They are connected to the EEG machine. This amplifies the tiny electrical messages given off by the brain, and records their pattern on paper or computer. The test is painless. Some types of seizure produce typical EEG patterns. However, a normal recording does not rule out epilepsy, and not all EEG abnormalities are related to epilepsy.
- Blood tests and other tests may be advised to check on your general well-being. They may also look for other possible causes of the event.
Although helpful, tests are not foolproof. It is possible to have epilepsy with normal test results. Also, if an abnormality is found on a brain scan, it does not prove that it causes seizures. However, tests may help to decide if the 'event' was a seizure, or caused by something else.
Sometimes no firm cause can be found to explain the event. A doctor may advise to wait and see if it happens again if there is doubt about the diagnosis.
What if it is a seizure?
Even if a seizure is diagnosed, it may be the only one you ever have. For this reason epilepsy is not usually diagnosed after a single seizure. The definition of epilepsy is recurrent seizures. Other pages in this series provide information about different types of epilepsy.
© EMIS and PIP 2005 Updated: September 2005 PRODIGY Validated
